Our favorite little girl, “Savvy,” who continues exploring her world as only a 3 year old can, as viewed through the eyes of her father. But get this: it alternates between chapters about Savvy and chapters that tell the stories of other real life people who have Long QT Syndrome, a potentially life threatening heart condition. It’s one chapter about Savvy, then a chapter about a different Long QT person, alternating back and forth through the book. In between the chapters are fascinating vignettes from a Norwegian friend who tells stories about his family and their history of LQTS. All the stories in the book are all about how each family found out that they had Long QT, how they deal with it, etc. Some of them consider themselves “special needs.” Others don’t. Some found out that they had Long QT by passing out and wrecking their cars! Some were misdiagnosed with epilepsy for years. Some of their stories are like reading TV medical drama. Some are like reading a comedy. All of them are true.
There are a lot of things to love about kids, and this story is just one example of how my daughter constantly surprises me
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